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I almost miss the fatigue Options
Paul Barrett
#1 Posted : Sunday, May 19, 2013 2:21:14 PM Quote
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Joined: 4/24/2013
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Location: Hexham
3rd week of a course of high dose steroids and I have exchanged the overwhelming fatigue with steroid euphoria. I feel like Bilbo Baggins 'all stretched and thin like a piece of butter spread too thin on the toast.' Somewhere in the middle would be nice.: As the dose steps down we may find that point.
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
Sheila-R
#2 Posted : Monday, May 20, 2013 9:25:38 AM Quote
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Joined: 1/29/2010
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Ha Ha such an apt description, but there is a bonus to only needing 3 hours sleep a night , you get lots of reading done
Hope you don't come down with too much of a bang
Paul Barrett
#3 Posted : Tuesday, May 21, 2013 7:08:34 AM Quote
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Location: Hexham
I wish I felt relaxed and pain free enough to read but I am too fidgety. And as soon as I get in bed my pelvis lights up like a bonfire. My routine has become:

Step 1: Take 2 x paracetamol and 2 x 30 mg codeine.
Step 2: If no luck get up and get a warm milky drink
Step 3: If no luck take 3 - 5 mg ora morphine

Sleep for a few hours
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
stvcoward
#4 Posted : Tuesday, May 21, 2013 9:01:26 PM Quote
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Joined: 4/14/2013
Posts: 12
Location: egham surrey
hi paul,
Im about to bore you with my solution to your fidgetyness, I too have been on high doses of steroids and many moons ago i attended a ten day intensive course of meditation.
the course stipulated, no talking, no eye contact and ten hours per day were spent sitting trying to achieve the instruction.
For the first three days we were asked to simply observe our breathing, concentrating on the air entering your nose and the air leaving, without trying to change or force its natural flow.
You will find at first this observation is impossible to maintain for more than a few seconds, your mind will disappear to a new thought almost immediately, if you keep on returning your mind to the air passing in and out you'll notice that as the air goes in, it will be ever so slightly warmer as it comes out and if you really study hard you can feel the hairs in your nose moving in and out. Now, although i had the opportunity to attend this intensive instruction, it did take me the full three days to master some degree of control over my wandering thoughts the course then started several new observations but this first technique of controlling your thoughts helps me no end, especially when lying awake with hyper tension and i now find as i slowly calm my mind, sleep usually follows.
You will probably try to do this a couple of times and think that its not for you, but ask yourself, when we close our eyes shouldn't we be able to control our minds, if you slow your thoughts your body will usually follow.
steve.
Paul Barrett
#5 Posted : Tuesday, May 21, 2013 10:29:38 PM Quote
Rank: Advanced Member


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Joined: 4/24/2013
Posts: 703
Location: Hexham
Hi Steve

I will try anything! :)
Paul Barrett

Hexham - Northumberland - Loads of spectacular walks - all I need now are the joints to go with them! :)

Enthesitis (2012)
Ulcerative Colitis (1990)
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